Friday, June 3, 2011

scraping bottom

So things have been gradually getting worse. I required platelets yesterday, and my neutrophils - essentially my immune system - are down to about zero now. I have to be super careful to not pick up infections, and we're monitoring my temperature around the clock. Any temp above 100.5 is a guaranteed hospital admission. Today they started me on Vancomycin twice a day; next dose at midnight. A two hour infusion that I'm doing at home. This is for some pretty rough mouth sores and sore throat that have developed that keep me from eating most solid foods. Cold things like smoothies, iced juices, tapioca, Ensures are pretty much the order of the day I manage to stay hydrated. I have a mouthwash that provides some relief, but not quite as much as some pretty strong pain meds. The upside, I suppose, is that there has been some loss of tonnage.
My energy is way down and most of the day I feel like laying in bed. Judy is here taking excellent care of me and we are having some good laughs. The hideous weather of a couple days ago has broken and it is beautiful, classic spring weather now (60's at night, low 80's during the day, breezy and dry). So that's a blessing. The great care at Hopkins is a blessing too, they never cease to impress me. More soon when my head is a bit clearer. Thanks all ~

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